Living with VACTERL has been a way of life for our family.

Our family life has revolved around surgeries, doctor's appointments, in and out patient procedures. Ronald McDonald House is our vacation getaway.

Monday, May 10, 2010

And They Call the Wind Mariah

I worked at Primary Children's Medical Center, Respiratory Therapy Dept. After training in Peds ICU I was sent to train in the NICU. There I met the nurses who would be the connection to meeting and eventually adopting my lil Mariah.
Chad and I had recently moved back to Salt Lake City after he completed his doctoral program. My ole RT dept was not hiring at the time... I was at home when one of the nurses called me. Shana,' I have a birth mom here who believes her little girl should be placed in a home with a mom and a dad. Your name came to me.. Shana, this is a baby girl with VACTERL, pink tet, colostomy bag, feeding tube. What should I tell this birth mom?"
Two days later this friend brought Mariah to our home. We became instant family, instant parents of a special needs child. The first items I purchased for her were not toys, or clothing... colostomy bags and paste.
I would like to share my story with you. We have had many spiritual experiences with each surgery, illness and setback. This blog I hope will offer some peace for you.